Purple Day 2012 is Coming!
Purple Day is a grassroots effort dedicated to increasing awareness about epilepsy worldwide. On March 26, people from around the globe are asked to wear purple and spread the word about epilepsy. The Anita Kaufmann Foundation has teamed up with epilepsy organizations from around the world to help make Purple Day one of the largest global epilepsy awareness initiatives ever. As a global sponsor...
Read MoreEvan Moss writes book to raise money for seiure dog.
Evan Moss, who has epilepsy, wrote “My Seizure Dog” to help raise money for a dog trained to detect an oncoming seizure and alert his parents. The dog will cost $13,000. Evan Moss’ seizures come quietly in the night. When they strike, the 7-year-old’s parents have to give him medicine tomake them stop — or risk brain damage. But to do that, they have to know they are happening. Lisa...
Read MoreSudden Death Risk of Epilepsy
July 5, 2011 — People with epilepsy who are otherwise healthy are known to have a risk of unexplained sudden death that is more than 20 times higher than the general population. Doctors call it sudden unexpected death in epilepsy or SUDEP. However, that risk may be reduced by a variety of precautions, a new review of research finds. The review, published online in The Lancet, should be...
Read MoreSUDEP Recommendations
Dr. Larry Hirsch and other investigators published a report of the National Institutes of Health Workshop on Sudden Unexpected Death in Epilepsy (SUDEP) in the May 31, 2011, issue of the journal Neurology. The report summarizes the discussions and recommendations of the workgroup including lessons learned from investigations of sudden infant death syndrome, sudden cardiac death, autonomic and...
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