EpilepsyU

2015 Brevard County Epilepsy Walk

2015 Brevard County Epilepsy Walk

2015 Brevard Epilepsy Walk! The Walk was a huge success. Here are some pictures and a short video from the event!   GALLERY Credit: The latter 154 photos were provided by Rick Koury Photo Artistry!   SPONSORS: Gold Sponsor Florida Hospital for Children Health First Neurosciences Supernus Pharmaceuticals Sunovion Pharmaceuticals  Wayne Densch Charities Silver Sponsors Dr. Joseph Cimino, Pediatric Neurology, P. A. Cyberonics, Inc. Lundbeck, Inc. Nanny & Papa Dave UCB Pharma, Inc. Bronze Sponsors CrossleyShear Wealth Management Neuroskeletal Imaging Orlando Epilepsy Center Upsher-Smith Laboratories, Inc. Widerman Malek, PL   BECOME A SPONSOR BY   Contacting...

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Epilepsy Awareness: About the Purple “e” Ribbon

Epilepsy Awareness: About the Purple “e” Ribbon

Epilepsy Awareness: Charity Designs Bold Purple “e” Ribbon to Stand Out From the Crowd 1 in 4 people will have a seizure during their lifetime, and 1 in 26 people will develop epilepsy. Today, 3.5 million people in the United States have epilepsy, making it the 4th most common neurological condition. Yet, despite its high incidence in the U.S., epilepsy receives a small percentage of research funding, and little attention, compared to other medical disorders. One charity, the Epilepsy Association of Central Florida, is intent on bringing epilepsy out of the darkness by building widespread public awareness through its innovative new marketing efforts. With purple being the internationally recognized color for epilepsy awareness, there are a proliferation of charitable causes that have adopted it and the generic awareness ribbon. In order to differentiate epilepsy from other causes, Epilepsy Association of Central Florida has designed a proprietary new epilepsy-specific purple ribbon in the shape of a bold and contemporary “e” to help build epilepsy awareness. “Even with epilepsy being so common, it isn’t talked about as much as it should be due to the many myths and stigmas that continue to surround the disorder,” said Chuck Carmen, Executive Director of Epilepsy Association of Central Florida. “We want to change that by providing more information about what epilepsy is and is not, which in turn, will help increase awareness about the condition.” The new purple “e” ribbon was formally introduced to the public as part of the nonprofit organization’s recent launch of The EpilepsyStore.com, the first online retail marketplace where people can “Shop Purple for a Purpose™.” The “e” store, as many refer to it, features affordable, custom-designed items with the purple “e” ribbon, including fashionable jewelry, tumblers, a necktie, hats, a license plate frame, car magnets, and even a limited edition set of purple and white “e” Christmas ornaments. 100% of the proceeds from the sale of these items benefit the programs of Epilepsy Association of Central Florida, so customers can purchase with confidence knowing they are helping others in need. “EpilepsyStore.com serves two important missions which include building epilepsy awareness and helping raise funds to put an end to seizures,” said Mr. Carmen. “Our goal is to differentiate epilepsy as a cause that is worthy of widespread public support, and to give it a recognizable brand identity that will gain the attention of millions with epilepsy, and even millions...

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Epilepsy Awareness: It’s “Christmas in July” at the EpilepsyStore.com

Epilepsy Awareness: It’s “Christmas in July” at the EpilepsyStore.com

EpilepsyStore.com is celebrating “Christmas in July” with a limited-edition set of purple and white holiday ornaments designed with the brand’s signature “e” ribbon to raise epilepsy awareness. Proceeds from the sale of these ornaments will help improve the quality of life for those 3.5 million Americans living with epilepsy. EpilepsyStore.com is helping to build epilepsy awareness through its exclusive, limited-edition set of purple and white Christmas ornaments with the brand’s signature “e” ribbon. This one-of-kind Christmas ornament has been designed so families affected by epilepsy can share the message of epilepsy awareness during the holidays with their family and friends. Orlando, Florida (PRWEB) July 20, 2015 [EpilepsyStore.com, the new nonprofit online retail marketplace where people can “Shop Purple for a Purpose™”, is celebrating “Christmas in July” to raise epilepsy awareness and generate funds to improve the quality of life for those 3.5 million Americans living with epilepsy. To commemorate this event, an exclusive, limited-edition set of purple and white Christmas ornamentswith the brand’s signature “e” epilepsy awareness ribbon have been designed especially for the EpilepsyStore.com. The trademarked purple “e” ribbon was created to distinguish epilepsy from over 25 causes that are using a generic purple awareness ribbon. With 100% of the proceeds from the sale of these holiday ornaments benefiting the programs of [Epilepsy Association of Central Florida, customers can purchase with confidence knowing they are helping others in need. Funds generated from this venture will help to support specific cause-related activities such as epilepsy prevention and education presentations, individual and family case management, support groups, and epilepsy-related medical services such as laboratory testing, neurologist visits, and diagnostics such as EEG’s and MRI’s to non-insured, underinsured, and those with pressing economic needs. “This one-of-kind Christmas ornament has been specially designed so families affected by epilepsy can share the message of epilepsy awareness in a subtle way, and, hopefully start a conversation about epilepsy during the holidays with their friends and loved ones,” said Charles Carmen, Executive Director of Epilepsy Association of Central Florida and founder of the EpilepsyStore.com. “There are still too many myths and stigmas surrounding this disorder that we must dispel.” EpilepsyStore.com is launching its “Christmas in July” event with a specially priced introductory offer of $14.95 for the set of two ornaments, which includes one each in purple and white. The hope is that these festive epilepsy awareness items will be both appealing and accessible to...

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Epilepsy Association Receives Top Rating, 2013 Great NonProfits

Epilepsy Association Receives Top Rating, 2013 Great NonProfits

EPILEPSY ASSOCIATION OF CENTRAL FLORIDA INC has qualified for a 2013 Top-Rated Nonprofit award from Greatnonprofits. This is a great honor, given less than 10% of eligible nonprofits have received this...

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1st Annual EACF “Purple Day” Picnic

1st Annual EACF “Purple Day” Picnic

Our first ever Purple Picnic was a huge success! We had a fantastic turnout, perfect weather and tons of fun! We celebrated our founder, Merle Evanchyk’s, 90th birthday, the EACF’s 50 year history and International Purple Day. Merle Evanchyk was even presented a special proclamation from the City of Orlando officially making March 24, “Merle Evanchyk Day”! Some of the activities were hula-hoop contests, egg-in-spoon races, sack races and we had PJ the Clown on hand twisting funny balloons and making everyone laugh and smile! Here is the video our Executive Director, Chuck Carmen recorded and pictures taken by our board member, Jennifer Felder. Thanks to all of our epilepsy supporters, volunteers and special thanks to Orlando City Councilwoman Patty Sheehan for presenting the proclamation! Click here to view the gallery on...

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Check out EpilepsyU Mobile!

Check out EpilepsyU Mobile!

The new EpilepsyU is fully mobile capable. Almost every feature is available on the new mobile app! Simply visit this site on your iPhone, iPod touch, iPad, Android powered device, and other supported “smart” mobiles to view our mobile site. If you visit on an iOS device, add our bookmark to your “home screen” for […]

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