CHUCK CARMEN, EXECUTIVE DIRECTOR
Chuck Carmen has been the EACF’s Executive Director since 1994. Mr. Carmen has been selected by Southeast Association Magazine as one of the four most influential Executives in the Southeast and is a Board Member of the Florida Society of Association Executives. Chuck is the second Executive Director in EACF’s long history, and, is the longest serving Epilepsy Executive Director in Florida.
In addition to managing the day-to-day operations of EACF, his experience and knowledge has certified him as an “expert witness” where he has testified in numerous high profile cases. Personally he has conducted hundreds of presentations, seminars, and training programs on all aspects of epilepsy as well as becoming one of the nation’s leaders in the education and prevention of Shaken Baby Impact Syndrome.
CEIL LAYFIELD, EXECUTIVE ASSISTANT
Ceil joined the staff of the Epilepsy Association (EACF) in April of 2010. In her role as the assistant to the Executive Director she provides administrative support and acts as a liaison between the Executive Director and program services. Ceil also serves as a client advocate. She participates in events that provide education and information about Epilepsy and seizure disorders.
Her background in event planning and public relations has been a perfect fit as coordinator of the annual “AutoClassic” Golf Tournament and Auction presented each year by the Central Florida Auto Dealers Association benefiting the EACF and, the first annual “Purple Picnic” hosted by EACF in celebration of the 50 year anniversary of EACF and the founders 90th Birthday.
Prior to joining the EACF, Ceil worked at McNamara Pontiac, Inc. for nearly 25 years, serving as the Executive Assistant to the President & Owner. She organized community functions for the dealership, coordinated the General Motors Standards for Excellence customer service and the Child Safety Seat initiative programs, employee relations, benefits and activities. She interacted with top executives, government officials, community leaders and corporate CEOs.
Her affiliations are with Children’s Safety Coalition of Orange County, Lake Villas Condominium Association, Sea Oats Condominium Association, Orlando Police Department, Orange County Sheriff’s Department, National Wild Turkey Federation, West Orange Chamber of Commerce, Orlo Vista Chamber of Commerce and the Orlo Vista United Safe Neighborhood, and Go Gators!
BEVERLY KENNEDY, DIRECTOR OF PREVENTION AND EDUCATION
Bev Kennedy has been with EACF since 1996. She has coordinated all activities from the implementation to completion of EACF’s annual golf tournament/auction and developed Epilepsy Awareness Walks. She has conducted thousands of presentations, seminars and “train the trainer” sessions on epilepsy and shaken baby impact syndrome (SBIS) as well as advocating for persons with epilepsy. She is skilled and knowledgeable having presented at several state conferences, such as Florida School Health Association Conference and Special Olympic Conference.
She was instrumental in developing a national educational program on SBIS that has delivered nearly 15,000 educational videos and teaching curriculums to health educators, nurses, teachers and many more throughout the United States and internationally. She initiated a program distributing thousands of SBIS brochures to area hospitals to be placed in each new Mom’s take home packet to educate them on the dangers of SBIS. She has distributed thousands of bicycle helmets throughout four counties (Orange, Osceola, Seminole and Brevard) and provided numerous trainings on how to fit a helmet. She was recognized by the Seminole County School Board as one of three top school educational presenters.
ALLYN BENCEN, EDUCATION SYSTEMS MANAGER
Allyn Bencen comes the EACF with a broad background in marketing, information technology and hospitality management. A graduate of UCF’s Rosen College of Hospitality Management, Allyn’s career took flight in Golf Management while he continued developing technical skills such as website design and mobile application development. After holding several positions in the Golf Industry from Outside Staff Manager, to Assistant Chef, to Cafe Manager, he got his first break in the field of technology as a web developer and then Search and Social Media Manager.
Allyn has taken a leading role in several charity fundraisers such as the 2008 Pink Ribbon Golf Classic held at Mystic Dunes Golf Club, benefitting the Susan G. Komen Foundation, and the 2008 Aquaball held at SeaWorld, benefitting family programs for the Central Florida YMCA. He is an avid supporter of the Epilepsy Association of Central Florida and an active member of EpilepsyU.
EACF SOCIAL CASE WORKERS
PACHI MANGIONE, SENIOR CASE MANAGER
Pachi Mangione began working at the Epilepsy Association of central Florida in 1997. She graduated from Barry University, with a BPA and also hold a degree in Mental Health Degree (AAS) from Texas. She completed her Certification in Case Management here in Florida.
Her background includes but is not limited to Case management, Residential Care, Mental Health, and Epilepsy to name a few. As a case manager, she has worked extensively with the public, providing information, referrals, support (1:1 and support groups) and education to client their family and friends.
As a bilingual translator, she has been able to assist both our clients and their family when a language barrier exists. Volunteering in many of EACF’s events throughout the years, Pachi has focused on networking and promoting the EACF. Through her networking, she has organized several critical donations to the EACF.
CATHY SPARKS, CASE MANAGER
Cathy has been with the Epilepsy Association of Central Florida since 2007. Previously, she held the position of the Florida Department of Health/Epilepsy Association of Central Florida contract auditor. As Eligibility Determinations Department Manager for the Orange County Health Department she not only provided training to staff, but maintained eligibility guidelines as required by Florida State Statutes. In addition, Cathy assisted with creating and implementing program guidelines for the first Primary Care Unit in Orange County for residents that were medically indigent.
Cathy’s community activities include volunteering for the annual gift-wrapping fund-raiser for the agency. She originated and implemented the now ever-popular, “FREE” car wash “fund-raiser” for the Oakridge High School Marching Band, and was responsible for managing the OHS football concession stand! Her love of animals is quite apparent by the numerous photos in her office, and includes an eclectic lovable menagerie of dogs, birds, cats and goats!
Cathy is an integral part of the Epilepsy Association of Central Florida providing fervent consideration and assistance to our clients afflicted by seizure disorders. Her attention to their individual needs broadens their ability to truly enjoy a quality-filled life.
Jackie manages the Brevard region for EACF. Jackie has been with the Epilepsy Association of Central Florida since after the hurricanes of 2004. She manages the Brevard County office for EACF. Prior to working for EACF, Jackie worked in the field of parent education and child abuse prevention .
EACF VOLUNTEERS “EXTRORDINAIRE”